Navigating the holidays after TBI: A guide for families and caregivers

Rebecca Gormley, MS, CCC-SLP, CBIS, CLC, and Lindsey Nolt, MS, CCC-SLP, CLC

Each year, millions of Americans experience a traumatic brain injury (TBI). The physical and cognitive effects of a TBI can impact both survivors and their families. When someone returns home after a serious brain injury, families may have to provide additional support with daily activities, manage new challenges and navigate changes in family roles and routines.

The holiday season can create additional considerations for family members and caregivers of TBI survivors. Although the holidays may look different after a brain injury, that does not mean they have to be any less meaningful or enjoyable. With planning, flexibility and understanding, families can continue creating special memories while prioritizing their loved one’s comfort, safety and well-being.

Here are some tips to help make holiday celebrations and traditions more manageable while caring for a loved one with a brain injury.

Keep gatherings smaller and more intimate

Large gatherings can be overwhelming for someone recovering from a TBI. Instead of one large celebration, consider inviting smaller groups over for visits and spreading them out over a few weeks.

This will allow your loved one to spend more meaningful time with others rather than feeling overwhelmed and fatigued.

Be flexible with your schedule and offer breaks when needed

When visiting another family member’s home, ask ahead of time if a quiet space is available for your loved one to take breaks. If they seem overwhelmed or fatigued, consider leaving early.

Remember that taking a break or shortening your visit is okay.

Plan for meals and other care needs

If your loved one experiences feeding or eating challenges because of a brain injury, develop a feeding or eating plan for gatherings. Consider bringing your loved one’s food and any necessary feeding supplies. Depending on those specific needs, you may also want to pack medical supplies or adaptive equipment.

Planning ahead can decrease stress and help everyone enjoy the celebration.

Prepare your loved one for what to expect

Prepare your family member by discussing what the gathering may look like before you attend. Explain where you are going, who may be there and what activities to expect. If your family member with a brain injury experiences memory challenges, review pictures and names of family members or friends.

This can help your loved one enjoy the event more by reducing uncertainty.

Help family and friends understand how things have changed

Although your loved one may look the same physically, there may be challenges with communication, memory, attention, fatigue or emotional regulation. Discuss your loved one’s challenges and needs with family and friends beforehand. Communicating ahead of time can help make the gathering feel more comfortable and enjoyable for everyone.

Also, communicate with others throughout the event in case your loved one needs a break or needs to leave early.

Be mindful of environmental factors

TBI survivors can find bright lights, loud music, large crowds and multiple conversations challenging. When possible, plan your visit during less busy hours and choose quieter settings.

Also, pay attention to your loved one’s cues, which can help you determine if the activity or setting needs adjustment or if a break would help.

Take care of yourself as well

Caregiving can be demanding on its own. The added expectations of the holidays may contribute to additional stress. Give yourself permission to ask for help, simplify traditions and let go of expectations. You matter, too.

The holidays may look different after a brain injury but with flexibility and a few adjustments, families can enjoy time together, continue meaningful traditions and create new memories.