Muscular Dystrophy and Neuromuscular Disease
If you or a loved one has muscular dystrophy or another neuromuscular condition, Good Shepherd’s expert staff can help with rehabilitation services for your lifespan.
At Good Shepherd, we know that each individual with muscular dystrophy has unique abilities and medical needs. Here, we work with you to develop goals and the appropriate treatment plan to help you reach them.
Good Shepherd’s care team includes physicians specializing in physical medicine and rehabilitation and neurology, as well as physical, speech, occupational and respiratory therapists, rehabilitation nurses, care managers, psychologists, dieticians and pastoral care providers.
Levels of care:
- Good Shepherd’s outpatient Muscular Dystrophy Clinic is available by appointment on Mondays in the Good Shepherd Rehabilitation Hospital-Allentown.
- Good Shepherd’s two long-term care inpatient facilities offer a caring environment to individuals with neuromuscular disease.
- Other inpatient and outpatient services may be appropriate for individuals with neuromuscular disease.
- Children with neuromuscular conditions can benefit from Good Shepherd's Outpatient Pediatrics Program and Good Shepherd Rehabilitation Hospital Pediatric Unit.
- Many of Good Shepherd’s wellness programs, including a fitness center with accessible equipment and a warm-water therapy pool, home modification and more, are appropriate for individuals with neuromuscular conditions.
Good Shepherd’s Muscular Dystrophy Clinic is the only one in the Lehigh Valley region and is supported, in part, by a generous grant from the Muscular Dystrophy Association.
Good Shepherd cares for individuals with neuromuscular diseases, such as:
- Amyotrophic lateral sclerosis (ALS)
- Cerebral palsy
- Multiple sclerosis
- Muscular dystrophy
- Spina bifida
- Spinal muscular atrophy
Good Shepherd’s Muscular Dystrophy Program specializes in evaluating and treating:
- Cognitive or linguistic impairments
- Disturbance in gait or mobility
- Involuntary movement
- Muscle weakness, tightness or spasticity
- Speech and language impairments or swallowing disorders
Services available at the Good Shepherd Muscular Dystrophy Clinic include:
- MD Clinic staffed by Good Shepherd and Dr. Terry Heiman-Patterson, Drexel University College of Medicine
- Physical medicine and rehabilitation physician visits
- Therapy evaluations
- Nerve conduction studies
- Psychological and social services evaluation
- Wellness and fitness opportunities
- Home modification
- Flu shots
Assistive and rehabilitation technology for individuals with muscular dystrophy or neuromuscular disease:
Good Shepherd is a Center of Excellence in the use of technology to enhance lives and augment rehabilitation for children and adults. At Good Shepherd, our team uses leading-edge rehabilitation and assistive technology, coupled with expert hands-on therapy, to help maximize function and increase independence in our patients. Assistive technology services include:
- Wheelchair seating and mobility program
- Augmentative and adaptive communications
- Adaptive computer access